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EyeMelanoma.org

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Up-to-date links to a wealth of reliable information and resources for ocular melanoma patients and their families

Up-to-date links to a wealth of reliable information and resources for ocular melanoma patients and their families

Since 2011, EyeMelanoma.org's mission has been to serve as the OM community's up-to-date reference guide for accessing reliable Ocular Melanoma patient support resources and online educational information for Uveal Melanoma and for Conjunctival Melanoma.

EyeMelanoma.org, a U.S-based website, lists OM resources from the United States most often and from other countries or international organizations that provide their services/materials in English.

Click on tabs above to find links to: Nonprofits .... Doctors .... Diagnosis & Treatment .... Research .... Clinical Trials .... Financial Assistance .... Personal Support .... Mental Health Support .... Patient Empowerment .... Vision-Related Support .... Conferences .... Videos .... Articles

In 2025, it is estimated that 5 people in every 1 million in the United States will be diagnosed with a rare cancer that begins in the cells (melanocytes) that make the eyes' pigment (melanin). This type of eye cancer is called both Ocular Melanoma and Eye Melanoma. In the medical community and on the internet, the following terms are used to further identify the most common locations of this eye tumor:


  • The uvea — the middle layer within the eye that lies above the retina and beneath the sclera and cornea — is the site for eye melanomas approx. 85% of the time. Uveal Melanoma and Intraocular Melanoma (meaning "within the eye") are used interchangeably to indicate this location. Depending on where the tumor is in the uveal tract, the cancer will also be more specifically identified as either Choroidal Melanoma (approx. 90% of uveal melanomas), Ciliary Body Melanoma, or Iris Melanoma.

  

  • Approx. 5% of eye melanomas occur in the conjunctiva membrane that covers the white outer layer (sclera) of the eye and that lines the eyelid. A tumor located here is referred to as Conjunctival Melanoma.



Statistics compiled from American Academy of Ophthalmology; Text: EyeMelanoma.org

Illustration of eye anatomy with the parts of the eye labeled

Illustration provided with permission from National Institutes of Health's National Eye Institute

​Resources on One or More Pages Were Added or Updated on August 26, 2025

Any Feedback? Please Email: Erica@EyeMelanoma.org

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Medical Disclaimer: This site is for informational purposes only and does not provide medical advice.

Focus Area: Ocular Melanoma Eye Cancer — Both Uveal Melanoma and Conjunctival Melanoma.
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