Hyperlinks Checked on January 10, 2018
This Page's Content Updated on January 10, 2018

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Copyright 2011–2018.  EYEMELANOMA.ORG.  All Rights Reserved. 
E-Mail:
Erica@EyeMelanoma.org  

Talking with Children About Cancer 


From 
TellingKidsAboutCancer.com

"A support tool for parents [...] developed by RTI International, Washington University in St. Louis' Health Communication Research Library, StoryCorps, and CommunicateHealth. The advice and suggestions included in this tool were adapted from existing studies and research."

www.tellingkidsaboutcancer.com

​​​​​You Are Not Alone ...


On this page, You'll find:

-- Online Forums

-- An E-Mail Listserv

-- Peer-To-Peer
Buddy Programs

-- Virtual Support Groups

-- Phone Support 
(Helplines)

-- An Online One-on-One Chat Service







​   "Every one of us gets through the tough times because SOMEBODY IS THERE, standing in the gap to close it for us."

~Oprah Winfrey 

​​​​personal support


Resources are listed in alphabetical order. Resource descriptions in quotes are taken directly from each website. 


Online Forums Focusing on Eye Melanoma Topics:  

Participation is free and available to patients, family members, and caregivers. 

​>>  Eye Cancer Network's Patient Forum
"An online community dedicated to eye tumor patients. The Eye Cancer Network's Patient Message Board is now the Patient Forum on Facebook."
www.eyecancercure.com/inspiration-and-support

​>>  Melanoma Research Foundation's CURE OM Patient Forum
"A community bulletin board designed to address the needs of the ocular melanoma community — patients and caregivers alike. Here you’ll find answers to questions about OM diagnosis and treatment, and support from people from all stages, levels of treatment, and from all over the world."
www.melanoma.org/find-support/patient-community/cure-om-forum

​>>  Ocular Melanoma Foundation's Patient Forum
"The forum allows patients, their friends and loved ones, and even doctors to interact with each other, share valuable treatment information, and learn more about ocular melanoma in a secure environment."
http://forum.ocularmelanoma.org/main/authorization/signUp?

>>  OcuMel UK's Online Support Groups
"OcuMel UK [based in England] runs a number of online support groups, hosted on Facebook. We also have a number of information-sharing groups."
www.ocumeluk.org/patients-and-family/support/online-support-groups


E-Mail Listserv Focusing on Eye Melanoma Topics:

Participation is free and available to patients, family members, and caregivers. 

 

​>>  OCU-MEL Listserv
"Created in 2001 for patients and loved ones, doctors, and researchers to exchange information or support via e-mail." [Note: This is similar to a forum, except that the messages are transmitted as e-mail and are, therefore, available only to individuals on the mailing list.]
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=ocu-mel&A=1



Peer-to-Peer Buddy Programs for Eye Melanoma Patients:

Participation is free and available to patients.


​>>  A Cure In Sight
"A Cure In Sight now offers the Cure Companions program to provide the newly diagnosed, or those suffering from disease progression, with a 'veteran' OM companion to be a friend, to offer support, and to help navigate travel and treatment options."

http://acureinsight.net/cure-companions


​>>  Melanoma Research Foundation/CURE OM
"The MRF Phone Buddy program provides newly diagnosed ocular melanoma patients with non-professional, emotional support from someone who has 'been there.' Buddies are a source of encouragement and hope to newly diagnosed individuals."

www.melanoma.org/find-support/phone-buddy



Virtual Support Groups for Eye Melanoma Patients:

Participation is free and available to patients, family members, and caregivers. 


>>  Melanoma Research Foundation/CURE OM

CURE OM "partners with Thomas Jefferson University Hospital's Oncology Social Work Program to offer virtual support groups to the primary and metastatic ocular melanoma community. These support groups meet via a virtual platform so individuals from across the country can join either by phone or Internet."
www.melanoma.org/find-support/i-have-melanoma/support-groups/om-support-groups



Phone Support (Helplines) for Eye Melanoma Patients:

Assistance is free and available to patients, family members, and caregivers.

​​​​​​>>  Melanoma Research Foundation/CURE OM

​"Funded by the MRF and staffed by CancerCare's professional oncology social workers, the free telephone helpline provides counseling and practical help to anyone facing [an ocular] melanoma diagnosis. Please call 1-877-673-6460 [toll free] Monday through Thursday, 9 a.m. – 7 p.m. and Friday, 9 a.m. – 5 p.m. Eastern Standard Time."

www.melanoma.org/free-patient-hotline


>>  National Cancer Institute

"The Cancer Information Service is a federally-funded cancer education program. ... Contact us to speak [for free] with a trained information specialist who can answer your cancer-related questions in English and Spanish. 1-800-422-6237 [toll free], Monday through Friday, 9 a.m. – 9 p.m. Eastern Standard Time."

www.cancer.gov/contact



Online One-on-One Chat Service for Eye Melanoma Patients:

Assistance is free and available to patients, family members, and caregivers. 


>>  National Cancer Institute

"By typing, you will have a live conversation with one of our Cancer Information Specialists through the LiveHelp Online Chat Service. They have knowledge of NCI information, publications, websites, as well as other science-based information about cancer and cancer-related resources that can help you. The session is one-on-one only; this service is not a chat room."
https://livehelp.cancer.gov/app/chat/chat_launch   (in English, Monday through Friday, 9 a.m. – 9 p.m. Eastern Standard Time)
https://livehelp-es.cancer.gov/app/chat/chat_launch   (in Spanish, Monday through Friday, 9 a.m. – 9 p.m. Eastern Standard Time)

​EyeMelanoma.org

In Loving Honor of My Sister Paula