Talking With and Helping Children When a Family Member Has Cancer


From 
TellingKidsAboutCancer.com

"A support tool for parents [...] developed by RTI International, Washington University, StoryCorps, and CommunicateHealth. The advice and suggestions included in this tool were adapted from existing studies and research."

www.tellingkidsaboutcancer.com



From CancerCare.org

Topics include "Explaining the Diagnosis," "Discussing Treatment," "Keeping Open Communication," and "FAQs," along with links to additional resources.
www.cancercare.org/publications/22-helping_children_when_a_family_member_has_cancer#!introduction

​EyeMelanoma.org

In Loving Honor of My Sister Paula

New Information Was Added to This Webpage on June 19, 2020
Hyperlinks Were Most Recently Verified Again on March 15, 2020 

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Copyright 2011–2021.  EYEMELANOMA.ORG.  All Rights Reserved. 
E-Mail:
Erica@EyeMelanoma.org  

Image of a gold-colored starfish on the seashore with website title saying EyeMelanoma.org In Loving Honor of My Sister Paula

​​​​​You Are Not Alone ...


On this page, you'll find:

-- Online Forums

-- An E-Mail Listserv

-- Peer-To-Peer
Buddy Programs

-- Virtual Support Groups

-- Phone Support 
(Helplines)

-- An Online One-on-One Chat Service







​   "Every one of us gets through the tough times because SOMEBODY IS THERE, standing in the gap to close it for us."

~Oprah Winfrey 

​​​​​personal support


Resources are listed in alphabetical order. Resource descriptions in quotes are taken directly from each website. 


Online Forums Focusing on Eye Melanoma Topics:  

Participation is free and available to patients, family members, and caregivers. 

​​
>>  Eye Cancer Foundation's Eye Cancer Network Patient Forum
"An online community dedicated to eye tumor patients."
www.eyecancercure.com/inspiration-and-support

​>>  Melanoma Research Foundation's CURE OM Patient Forum
"A community bulletin board designed to address the needs of the ocular melanoma community — patients and caregivers alike."

https://melanoma.org/legacy/find-support/patient-community/cure-om-forum

​>>  Ocular Melanoma Foundation's Patient Forum
"A confidential patient resource and social network." 
http://forum.ocularmelanoma.org/main/authorization/signUp?

>>  OcuMel UK's Online Support Groups
"OcuMel UK [based in England] runs a number of online support groups and information-sharing groups."
www.ocumeluk.org/patients-and-family/support/online-support-groups


E-Mail Listserv Focusing on Eye Melanoma Topics:

Participation is free and available to patients, family members, and caregivers. 

 

​>>  OCU-MEL Listserv
"Created in 2001 for patients and loved ones, doctors, and researchers to exchange information or support via e-mail." [Note: This is similar to a forum, except that the messages are transmitted as e-mail and are, therefore, available only to individuals on the mailing list.]
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=ocu-mel&A=1



Peer-to-Peer Buddy Programs for Eye Melanoma Patients:

Participation is free and available to patients.


​>>  A Cure In Sight
"A Cure In Sight now offers the Cure Companions program to provide the newly diagnosed, or those suffering from disease progression, with a 'veteran' OM companion to be a friend, to offer support, and to help navigate travel and treatment options."

https://acureinsight.org/patient-resources/cure-companions


​>>  Melanoma Research Foundation's CURE OM
​CURE OM partners with:

—"Imerman Angels to provide peer-to-peer support services to melanoma patients and caregivers. We invite you to register to be matched with a "Mentor Angel."
—"Patient True Talk, a patient-to-patient registry that allows patients and caregivers to search for others with a melanoma diagnosis or who have undergone similar treatments."
https://melanoma.org/patients-caregivers/find-support/connect-with-others



Virtual Support Groups for Eye Melanoma Patients:

Participation is free and available to patients, family members, and caregivers. 


>>  A Cure in Sight
​"Are you on lockdown or self-isolating for COVID-19 and feeling isolated? Join us on Tuesday evenings at 7 pm Eastern time on Zoom to connect with fellow OMies."
https://acureinsight.org/zoom-meeting-for-ocular-melanoma-patients-and-caregivers


>>  Melanoma Research Foundation's CURE OM

CURE OM "partners with Thomas Jefferson University Hospital’s Oncology Social Work Program to offer virtual support groups to the primary and metastatic ocular melanoma community. These support groups meet via a virtual platform. Licensed social workers facilitate the groups in a private and confidential setting."

https://melanoma.org/patients-caregivers/find-support/connect-with-others


Phone Support (Helplines) for Eye Melanoma Patients:

Assistance is free and available to patients, family members, and caregivers.

​​​>>  Melanoma Research Foundation's CURE OM

CURE OM refers people to "'Cancer Support Community‘s Helpline, which is staffed by professional counselors and oncology resource specialists who are experienced in helping people with cancer and their caregivers. They are available to provide emotional support as well as information about living with cancer and referrals to local, regional and national resources. Supportive counseling is available in over 200 languages [by phone or live chat]." 1-888-793-9355 [toll-free], Monday through Friday, 9 a.m. – 9 p.m. Eastern Standard Time. 

https://melanoma.org/patients-caregivers/find-support/connect-with-others


>>  National Cancer Institute

"The Cancer Information Service is a federally-funded cancer education program. ... Contact us to speak [for free] with a trained information specialist who can answer your cancer-related questions in English and Spanish." 1-800-422-6237 [toll free], Monday through Friday 9 a.m. – 9 p.m. Eastern Standard Time.

www.cancer.gov/contact



Online One-on-One Chat Service for Eye Melanoma Patients:

Assistance is free and available to patients, family members, and caregivers. 


>>  National Cancer Institute

"By typing, you will have a live conversation with one of our Cancer Information Specialists through the LiveHelp Online Chat Service. They have knowledge of NCI information, publications, websites, as well as other science-based information about cancer and cancer-related resources that can help you. The session is one-on-one only; this service is not a chat room."
https://livehelp.cancer.gov/app/chat/chat_launch   (in English, Monday through Friday, 9 a.m. – 9 p.m. Eastern Standard Time)
https://livehelp-es.cancer.gov/app/chat/chat_launch   (in Spanish, Monday through Friday, 9 a.m. – 9 p.m. Eastern Standard Time)