In Loving Honor of My Sister Paula


April 5 – April 7, 2019 ...
8th "Eyes on a Cure" Patient and Caregiver Symposium; Raleigh, North Carolina. Sponsored by CURE OM.


New Information Was Added to This Webpage on February 11, 2019
Hyperlinks Were Most Recently Verified on February 20, 2019

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​​​​​  "To make any kind of progress, we need to imagine a different reality and BELIEVE it's possible."
~Tali Sharot​​


    "We EMPOWER ourselves every time we accept responsibility for choosing the thoughts and feelings we act on."

~Karen Casey

be your engine 
and hope your fuel." 

~H. Jackson Brown, Jr.​

   "HOPE is the thing with feathers, that perches in the soul, and sings the tune
without the words, and never stops at all."
~Emily Dickinson​​​​

conference presentations

2016 – PRESENT:

>>  A Cure in Sight's 1st "Eye Believe" Patient Survivorship Seminar; Orlando, FL; November 28 – December 2, 2018

The following topics were discussed: Immunotherapy for OM • The Evolving Care Pathway of OM Lesions • Navigating Clinical Trials and Second Opinions • Cancer and Careers •  Harbour Ocular Oncology Lab • Current Approach for Metastatic OM • Aura Bioscience •  Carolina Eye Prosthetics • Navigating Finances • Nutrition • What Is a Cancer Cluster? • Delcath Update • Understanding Your Genetic Testing Results • Patients Bill of Rights and a Survivorship Plan • Tools & Techniques for Emotional Times • After-Treatment Effects on the Eye: Proton Beam vs. Plaque
​​Videotaped presentations:​ www.youtube.com/playlist?list=PLmNN38QAmj1Yi79zOuJhOEA_ETkGTfPCy

>>  Melanoma Research Foundation/CURE OM's 7th "Eyes on a Cure" Patient & Caregiver Symposium; Denver, CO; April 20–22, 2018

​​The following topics were discussed:​ Progress and Hope: A Historical Perspective on the OM Field • OM Treatment • Beyond Eye Treatment • Mindfulness • Adjuvant Therapy and Clinical Trials • Systemic Therapy for Metastatic OM • The Cancer Genome Atlas Update • Cannabis for Cancer • CURE OM Patient Registry Update and Panel Discussion • Huntersville, NC OM Cluster Update • Understanding Scans 101 • Liver-Directed Therapies • A Potential Molecular Target for OM Treatment

Videotaped presentations: www.youtube.com/playlist?list=PLqV-0vUlSC3YEj5ZhgDlpmoxcxE-VdL8T

Slide presentations: www.melanoma.org/understand-melanoma/resource-library/educational-recordings (on that webpage, scroll down to the April 20–22, 2018 section)

>>  Ocular Melanoma Foundation's 7th "Eye Am Not Alone" Patient Retreat; Stanford, CA; October 27–29, 2017

The following topics were discussed:​ Overview of Uveal Melanoma • Survivorship and Patient Quality of Life • Relationship Between Cutaneous Melanoma and Uveal Melanoma • Liver-Directed Therapies • Gene Expression Profile Test for Uveal Melanoma • Collaborative Research Initiatives • T-Cell Therapies and the Promise of Immunotherapy • Clinical Trials • Patient Q&A

Videotaped presentations: www.youtube.com/playlist?list=PL74Yz-RleyjZ9jS0sTxAmvo_hHNLmRk8b

>>  OcuMelUK's 7th Conference; Reading, England; September 22, 2017
The following topics were discussed: UK Clinical Trials for Metastatic OM • What Can We Learn About Immune Therapy from Immune Cells in Cancer Tissue? • Challenges in Treating OM • The Evolution of Interventional Oncology and Its Role in Treating Liver Metastatic Disease • Update on Collaborative International Research Efforts in OM • Controversies Regarding Biopsies of Intraocular Tumors • Psychological Impact of Cancer
Videotaped presentations: www.ocumeluk.org/patients-and-family/resources/annual-conferences

>>  Melanoma Research Foundation/CURE OM's 6th "Eyes on a Cure" Patient & Caregiver Symposium; Washington, DC; March 10–11, 2017

​The following topics were discussed: OM Basics and Post-Treatment Eye Care • Targeted Therapy and Research Updates • Immunotherapy • Liver Directed Therapy • Advances in Melanoma and Oncology • Huntersville, NC Cluster Update • Emory Eye Tumor SPORE Update • Clinical Trials 101 • CURE OM Patient Registry Update • Presentations by Patients

Videotaped presentations: www.youtube.com/playlist?list=PLqV-0vUlSC3YNFhtWBRvGaNdRpLIzseYO
Slide presentations: 
www.melanoma.org/understand-melanoma/resource-library/educational-recordings  (on that webpage, scroll down to the March 10–11, 2017 section)

>>  OcuMelUK's 6th Conference; Reading, England; September 23, 2016
​The following topics were discussed: Molecular Genetics • Targeting the Liver • Metastatic Treatment • How Can We Make Research Relevant, of High Quality, and Efficient? • "Uveal Melanoma Cure 2020 Project" Overview

Videotaped presentations: www.ocumeluk.org/conferences/developing-excellence-in-ocular-melanoma

>>  Ocular Melanoma Foundation's 6th "Eye Am Not Alone" Patient Retreat; Miami, FL; September 9–11, 2016

The following topics were discussed: Current State of Uveal Melanoma • Radiation Physics and 3D Eye Plaque Treatment Planning • Ocular Oncology Q&A • Percutaneous Hepatic Perfusion • Genetic Testing • Tissue Factor Biology • Clinical Trials Panel • Immunotherapy • Liver Directed Therapies

Videotaped presentations: www.youtube.com/playlist?list=PL74Yz-RleyjafgDzOGLlzu0FVqsVUc-dX
Slide presentations: 

>>  Melanoma Research Foundation/CURE OM's 5th "Eyes on a Cure" Patient & Caregiver Symposium; Atlanta, GA; March 4–6, 2016

The following topics were discussed: OM Basics • Eye Care: Treatment and Beyond • Prognosis and Medical Oncology Followup • How to Approach Systemic Treatment for Metastatic Disease • Localized Treatments for Metastatic Disease • Specialized Program of Research Excellence (SPORE) Update • Understanding a Cluster of OM Cases: Update from Huntersville, NC • Q&A Sessions • Patient & Caregiver Discussion Panels

Videotaped presentations:www.youtube.com/playlist?list=PLqV-0vUlSC3b3ZOU8pBS9mfjoQkfEvSid
Slide presentations: www.melanoma.org/archived-recordings  (on that webpage, scroll down to the March 4–6, 2016 section)

2014 – 2015:

​>>  Ocular Melanoma Foundation's 5th "Eye Am Not Alone" Patient Retreat; Cleveland, OH; October 16–18, 2015
Videotaped presentations: www.youtube.com/playlist?list=PL74Yz-RleyjahvJb44c_zDBVVHKfKHEXh

>>  OcuMelUK's 5th Conference; Reading, England; September 25, 2015
Videotaped presentations: www.ocumeluk.org/conferences/ocumel-uk

>>  Melanoma Research Foundation/CURE OM's 4th "Eyes on a Cure" Patient & Caregiver Symposium; Philadelphia, PA; March 6–8, 2015
​Videotaped presentations: http://jdc.jefferson.edu/mrf/2015

​>>  Ocular Melanoma Foundation's 4th "Eye Am Not Alone" Patient Retreat; Cleveland, OH; October 24–26, 2014

Videotaped presentations: www.youtube.com/playlist?list=PL74Yz-RleyjbDxjfvHxZSCF-esDdl8PjE

​>>  OcuMelUK's 4th Annual Conference; Liverpool, England; September 19, 2014

Videotaped presentations: www.ocumeluk.org/conferences/ocular-melanoma-the-eye-and-beyond

​​Note: Only links to conference presentations made less than five years ago are listed above in order to better reflect the latest information and advances from OM research and studies.