​EyeMelanoma.org

In Loving Honor of My Sister Paula

Discussing Medical and End-of-Life Care Wishes: A Topic for Everyone


From The Conversation Project

"Talking with your loved ones openly and honestly, before a medical crisis happens, gives everyone a shared understanding about what matters most to you at the end of life. You can use this Conversation Starter Kit whether you are getting ready to tell someone else what you want or you want to help someone else get ready to share their wishes." Available in more than a dozen languages — "Download and print for free​."

https://theconversationproject.org/starter-kits

New Information Was Added to This Webpage on February 22, 2019
Hyperlinks Were Most Recently Verified on February 22, 2019 

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Filling Out Advance Directives for Medical Care


From National Cancer Institute 
​"Advance directives [Living Will and Medical Power of Attorney] are legal papers that tell your loved ones and doctors what kind of medical care you want if you can't tell them yourself."

Fact sheet provides answers to key questions and a link to state-specific advance directives.

www.cancer.gov/about-cancer/managing-care/advance-directives
Above information is also available in Spanish.

www.cancer.gov/espanol/cancer/manejo-del-cancer/instrucciones-adelantadas


​​​

patient empowerment


Resource descriptions in quotes are taken directly from each website.


In All Areas of Life:

Information & tools to empower yourself — for patients, family members, and caregivers.


​>>  Advocating for Yourself  —  National Coalition for Cancer Survivorship

Topics in the Resources menu include "Cancer Survival Toolbox," "Talking with Your Doctor," "Employment Rights," "Becoming a Self-Advocate," "Planning Your Care," and "Remaining Hopeful."
www.canceradvocacy.org/resources/advocating-for-yourself

>>  Buiding a Strong Support Community  —  MyLifeLine
Features of Cancer Support Community's no-cost MyLifeLine web-based services include "Connecting Updates: Let your family and friends know how you’re doing; Helping Calendar: Coordinate volunteers to help with meals, rides to treatment, errands, child care, pet care, and more; and Care Coordinators: Make life easier by assigning family and friends as care coordinators to help manage your site and organize volunteers."

www.mylifeline.org


>>  Communicating Effectively with Healthcare Providers  —  The Empowered Patient Coalition

Topics include "Doctor Visits," "Speaking Up About Your Medical Care," "Second Opinions," "Preparing for Surgery," "Preventing Infections," "Medication Safety," and "Medical Errors."
​http://empoweredpatientcoalition.org/selected-resources/fact-sheets-and-checklists

>>  Deciding to Quit Smoking  —  National Cancer Institute

"Smokefree.gov provides free, accurate, evidence-based information and professional assistance to help support the immediate and long-term needs of people trying to quit smoking." A large variety of topics includes "Preparing to Quit," "Create Your Quit Plan,"  "Smokefree Apps," and "Talk to an Expert [Phone Support]."

https://smokefree.gov

This information is also available in Spanish.

https://espanol.smokefree.gov


>>  Finding or Keeping Your Job  —  CancerAndCareers.org 
"Cancer and Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools, and educational events."

www.cancerandcareers.org/en

This information is also available in Spanish. 
www.cancerandcareers.org/es

>>  Monitoring Your Cancer Treatment  —  American Cancer Society

"These worksheets can help you keep track of your side effects and medications so that you can better communicate with your health care team about them." Includes chemotherapy and radiation side effects worksheets, pain diary, and medicines list.
www.cancer.org/treatment/treatments-and-side-effects/tools-to-monitor-treatment.html


>>  Protecting Yourself Against Health Fraud Scams  —  U.S. Food and Drug Administration

"Health fraud scams refer to products that claim to prevent, treat, or cure diseases or other health conditions, but are not proven safe and effective for those uses." Webpage includes links to "Public Notifications and Safety Alerts," "Recalls," and "List of Tainted Supplements" and to a variety of consumer education materials on topics such as "Medication Fraud" and "Online Buying Fraud."

www.fda.gov/ForConsumers/ProtectYourself/HealthFraud/default.htm


>>  Resolving Cancer-Related Legal Issues  — Cancer Legal Resource Center
"CLRC is the only national dedicated center for patients, survivors, caregivers, and health care professionals to access confidential cancer-related legal information and resources at no cost [...] on matters like maintaining employment through treatment, accessing healthcare and government benefits, taking medical leave, and estate planning."
https://thedrlc.org/cancer