From American Society of Clinical Oncology
"The most common diagnostic tests and procedures — such as MRIs, Ultrasounds, Bone scans, PET scans, CT scans, and biopsies — are described" along with "questions to consider asking your doctor" about each one.
From American Association for Clinical Chemistry
"At the core of the LabTestsOnline website is a library of lab tests [see its Tests Index tab] that will provide helpful background for understanding why a test might be ordered and what the results might mean."
From American Society of Clinical Oncology
"Defines basic oncology terms, terms you may hear your doctor use when you are being treated or once you have finished treatment, and statistics terms used in cancer research."
Above information is also available in Spanish.
From National Cancer Institute
--Dictionary of Cancer Terms "is a resource with [more than 8,000] terms related to cancer and medicine."
--Drug Dictionary "contains technical definitions and synonyms for drugs/agents used to treat patients with cancer."
Resources are listed in alphabetical or date order. Resource descriptions in quotes are taken directly from each website.
>> American Cancer Society's Eye Cancer Guide
>> American Society of Clinical Oncology's Eye Cancer Guide
Topics include "Diagnosis," "Stages & Grades," "Treatment Options," "Latest Research," and "Questions to Ask the Doctor."
>> Melanoma Research Foundation's Ocular Melanoma Patient Guide
Topics include "Primary Uveal Melanoma," "Metastatic Uveal Melanoma," "Conjunctival Melanoma," and "Living with Ocular Melanoma."
>> National Cancer Institute's Eye Melanoma Treatment Guide
Topics include "Overview" and "Treatment."
This information is also available in Spanish.
>> Castle Biosciences' DecisionDx-UM Gene Expression Profile (GEP) Test
"By identifying the molecular signature of an individual’s eye tumor, DecisionDx-UM accurately predicts which patients with uveal melanoma are at low and high risk of metastasis within five years." NOTE: "The tumor tissue sample required for this test must be taken PRIOR TO radiation therapy."
>> INSIGHT Registry: Ocular Melanoma Patient Registry
Partners: "A Cure In Sight, University of California San Francisco Beckman Vision Center, and National Organization for Rare Disorders"
>> Rare Cancer Research Foundation's Pattern.org Project: Ocular Melanoma Tumor Tissue Donations for Cancer Research
Self-enrollment at RCRF's Pattern.org website within the six months prior to OM biopsy, surgery, or fluid drain "enables rare cancer patients to direct excess tumor tissue to cancer research. You can donate your tissue with any provider, at any hospital, at no additional cost to you. Your tissue will be sent to the Broad Institute of MIT and Harvard, where it will be used to develop next-generation research models [...] openly available to the cancer research community."
>> VISION Registry: Ocular Melanoma Patient Registry
Partners: "Melanoma Research Foundation's CURE OM, Massachusetts General Hospital Cancer Center, and Global Vision Technologies"
Note: The full version of the articles listed here can be read and printed at no charge using the links shown below, whereas most medical journal articles require a fee or subscription to read them. See EyeMelanoma.org/Journal-Articles for information on how to access all medical journal articles, including more articles available at no charge.
>> "Effects of Plaque Brachytherapy and Proton Beam Radiotherapy on Prognostic Testing: A Comparison of Uveal Melanoma Genotyped by Microsatellite Analysis"
Authors: Thornton, Coupland, Heimann, et al. In British Journal of Ophthalmology, February 2020.
>> "Single-cell Analysis Reveals New Evolutionary Complexity in Uveal Melanoma"
Authors: Durante; Rodriguez, Kurtenbach, et al. In Nature Communications, January 2020.
>> "Blood Biomarkers of Uveal Melanoma: Current Perspectives"
Authors: Rodriguez, Marta, Baameiro, et al. In Clinical Ophthalmology, January 2020.
>> Special Issue: Uveal Melanoma, Cancers journal, November 2019
In this special thematic issue on Uveal Melanoma in the open-access medical journal Cancers, the authors of 45 articles (31 original research articles, 11 reviews, one position paper, one network report, and an introduction by the editor) "summarize the current state of our understanding of uveal melanoma biology and recent advancements in uveal melanoma therapy and discuss opportunities for therapeutic interventions." Article examples include "Emerging Therapeutic Opportunities Based on Current Knowledge of Uveal Melanoma Biology"; "Immunotherapies for the Treatment of Uveal Melanoma — History and Future"; "Molecular Characteristics of Uveal Melanoma"; "Uveal Melanoma Biopsy: A Review"; and "Targeted Therapy of Uveal Melanoma."
>> "Overview of Advances in Vasculogenic Mimicry — A Potential Target for Tumor Therapy"
Authors: Ge and Luo. In Cancer Management and Research, October 2018.
>> "The Patient's Experience of Ocular Melanoma in the US: A Survey of the Ocular Melanoma Foundation"
Authors: Afshar, Deiner, Allen, and Damato. In Ocular Oncology and Pathology, September 2018.
>> "Non-Cutaneous Melanoma"
Book edited by Scott and Gerstenblith, Codon Publications, March 2018
Ch. 1: Uveal Melanoma (Grisanti and Tura)
Ch. 2: Genetics of Uveal Melanoma (Doherty, Alfawaz, Francis, et al.)
Ch. 3: Liquid Biopsy for Uveal Melanoma (Tura, Lueke, and Grisanti)
>> "Treatment of Uveal Melanoma: Where Are We Now?"
Authors: Yang, Manson, Marr, and Carvajal. In Therapeutic Advances in Medical Oncology, January 2018.